In some cases, researchers may find genetic changes in your DNA but do not know whether this mutation is disease-causing or not. Phone: This program is for individuals living in the United States, with a clinical diagnosis of an inherited retinal degeneration (IRD). Retina International have prepared a toolkit for genetic testing. This can be found here on their website. This genetic testing option was limited to retinal healthcare providers who had been approved for the study and it required patients to be members of My Retina Tracker Registry to qualify for testing. How does genetic testing occur through Target 5000? The webinar includes a a review of all program features and the online ordering process. The Foundation Fighting Blindness has created an open access, no-cost genetic testing program for individuals living in the United States with a clinical diagnosis of an inherited retinal disease. What is the Open Access Genetic Testing Program? The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. If you would like to support the My Retina Tracker Program, please click on one of the donation buttons below. How does genetic testing occur through Target 5000? Learn more about our expanded genetic testing panel and terms and conditions of the program. Genetic counselors play an important role in the genetic testing process. Blueprint Genetics provides the genetic testing with an over 260-gene Retinal Dystrophy Panel and high-quality clinical interpretation. Knowing the gene responsible for your condition can mean so much. My Retina Tracker Program - A Guide for Clinicians, Better Business Bureau Accredited Charity, Accessibility Statement, Tips & Guidelines, Preclinical and Translational Research Webinar Series, Virtual Workshop on Inflammation in Viral Gene Therapy of the Retina. Free Genetic Testing through My Retina Tracker. The Program provides genetic testing and genetic counseling services that may be used by any retinal healthcare provider capable of diagnosing an inherited retinal disease. The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, age-related macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. The Foundation Fighting Blindness Plays an Essential and Expansive Role in Driving Genetic Research for Inherited Retinal Diseases. Is there a genetic test available? EIN 23-7135845. It is important to remember that genetic testing techniques and our knowledge of genetics is advancing rapidly. This program is sponsored by the Foundation Fighting Blindness. When your disease causing gene has been identified in the research lab, your sample is sent for confirmatory clinically-accredited testing. Genetic experts and computational scientists must read through and interpret this data accurately to find what is the underlying genetic cause of your condition. The Foundation Fighting Blindness, in partnership with Blueprint Genetics and InformedDNA®, offers an open access, no-cost genetic testing program. "Genetic Counseling guides patients and families toward a clearer understanding of the limitations and benefits of genetic testing as well as the interpretation of test results. But most importantly, a positive genetic result allows you and your family to have a greater understanding of the condition. Join the fight and help us accelerate our mission. The Foundation Fighting Blindness, in partnership with Blueprint Genetics and InformedDNA®, offers an open access, no-cost genetic testing program. The Foundation is a beacon for those affected by these blinding diseases. Genetic tests therefore examine our DNA to find the disease causing mutation in a particular gene (or chromosome). It is also designed to help patients and families learn to manage the potentially stressful and emotional aspects of the testing process." This gives individuals the opportunity to contribute to research, development and the opportunity of being contacted about relevant clinical trials. 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